And So, The End

Posted: July 28th, 2010 | Filed under: On The Road | 24 Comments »

Yesterday we were invited by Debbie Wilpon to ride on to the field at Citi Field, home of the New York Mets, just before the start of the Mets’ game VS the St Louis Cardinals. We rode around the outer perimeter and on to the homeplate, where we were met by Valerie and Meredith Estess (Co-Founders of Project A.L.S.), Jennifer Homans (Tony Judt’s wife), Daniel and Nicholas Judt and a large cardboard cheque for $71,000. Footage from the journey was projected onto the Giant Screens, including a large “Text ALS to 27722″ graphic: It was very special ending to a very special campaign – and you can see here the piece featured on SNY.


With that, we came off the field, got changed, took our seats and reclined for the game, comfortable in the thought that we had completed the first chapter of this journey. To be sure, Move For ALS will have a life beyond Citi Field: I hope it continues to be embraced by our friends at Project A.L.S. and the wider ALS and stem cell research communities. The ultimate goal remains the same: to find treatments and a cure for ALS. For this to happen we need money – stem cell research is expensive – but, above all, we need a concerted effort on the part of individuals, institutions and governments to put their brains, their time and their energies behind this fight. There is no reason why we should not expect our business and political leaders to join us. Like any movement, we need momentum and action: the more people on board and the more noise we make, the closer we will come to beating ALS. It is that simple.


It was always my intention to use this campaign not just to draw people’s attention to ALS, but to make them angry. This disease is disgusting. We should be angry that it exists, that it is still so misunderstood, and that not more is done at higher levels to change this. All across America we met people who had a vague understanding of ALS, but only when I showed them the videos and explained just what this disease does, physically and emotionally, could you see a real change in their expression. It is my conviction that there is no other modern disease on Earth that causes the casual observer’s jaw to drop in quite the same way that ALS does.


Finally, a personal note. It has brought me an enormous amount of pride to have done something that in some small way has softened the blow of ALS for Tony and the Judts. They are a fine family; spirited, kind-hearted, strong and determined. In spite of all the mess created by ALS, Tony, Jenny, Daniel and Nicholas remain completely themselves; indeed, it is my own feeling that this experience will foster in the boys (13 and 15) a determination of spirit that will stand them in good stead throughout their adult lives. It has really been my honour to have done this in their name, and whatever happens in my future, I will always look back upon this journey as a defining moment and a wonderful experience. I am so pleased I was able to do it.


Thank you, too, to Valerie and Meredith and our supporters at Project A.L.S., to the Wilpon family, and to all of our loyal followers. We have followed every comment and every Facebook post, and they have been a joy to read.


Please Keep Moving!


Saul x




24 Comments on “And So, The End”

  1. 1 Ana said at 4:52 pm on July 28th, 2010:

    Very proud of you. You have moved so many, including myself, and for that I can simply say: thank you. Xx

  2. 2 Alexis Stratfold said at 5:10 pm on July 28th, 2010:

    You have done so much – you could not have done more. To have carried on riding over all the obstacles, both literally and metaphorically is truly incredible. Project ALS must be so so proud of you and so grateful that you pursued this idea, carried it out and toiled ceaselessly to help a cure for this appalling disease come closer. SO many people’s lives have been affected by you, Ana is right, you have lifted people’s hopes and made them look at their own lives. As chief of your 28 mothers, I am simply brimming with pride. X

  3. 3 Nadya G Sawney said at 6:10 pm on July 28th, 2010:

    I am so full of admiration for you and Auggie and all that you both have achieved…as individuals and as a team. Always know that what you feel within makes the difference to realising your goals.Your drive and sense of purpose will always be there to support you thoughout your life. This journey you just completed is now a reservoir of inner strength. Well done you.

  4. 4 Christina La Ferrera said at 8:59 pm on July 28th, 2010:

    Saul & Auggie! You are amazing! I am off to Tanzania tomorrow to keep the momentum for Move for ALS with my Mount Kilimanjaro climb! Stay tuned for pics :)

  5. 5 Sandy Britt said at 1:28 am on July 30th, 2010:

    It was an absolute delight to be a part of your incredible journey, and I’m so proud of both of you for your indomitable spirit throughout. I have checks from my office totaling almost $400 that I will mail in tomorrow from our fund raising efforts. Hope this helps…much love, Sandy

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